Day in the life

            Pain boils over, every inch of his body screams out for the end of it all, for sweet eternal sleep that will stop they wretched struggle of being alive. His body shook as his limbs twisted and writhed. A lights and sound rush past him, strange voices are heard. Then he feels piercing pain in his arm. He winces but then feels a flood of calmness wash over his body. Calm and relaxation in liquid form rushes through his veins. Everything becomes peaceful and the world goes dark. This is not the first time he has had such an experience and it wont be the last time. His name is Joe and he is nine years old.

            Joe was born with illness and will live the rest of his life with it. Pain, followed by surgery or long hospital visits then weeks of recovery. Joe thinks about his father’s old car. His dad had the car for so long it was mostly made out of spare parts. Joe feels like that car. Always breaking down and made of spare parts. He wasn’t born lucky enough to have a powerful engine or a dent resistant frame, Joe feels more like a beat up old sedan. This nine year old feels more aches and pains and has a longer medical history than his parents and rivals his grandparents.

            Many found it impressive that a child could handle such a huge burden and they couldn’t even grasp how he dealt with the pain. Joe couldn’t understand or grasp what it felt like to not be in pain. This was life and he knew no other way of being.

            In the weeks of recovery that followed a big flare up, Joe had a lot of free time at home, more than a normal child would have. He would spend hours in his room and think or sometimes read his little books. But this favorite thing was playing video games.

            He heard a large round man acting important and saying bad things about video games. “They corrupt today’s youth” and “all games are violent and lead to more violence”. Joe didn’t understand most of this. The games he played were wonderful. One afternoon he saved the world, or at least made a lot of progress toward saving the world. “Saving the world is a big job to do all before dinner” Joe said to his parents one evening during dinner when asked about his games.

            His games let him fly airplanes and drive fast cars. He could help people and find magical gems. He beat up bad guys, solved puzzles and one time built a city. Some games even let him hang out with his favorite super heroes from the comics. Video games were pure joy to him. In a world where a nine year old is fighting against his own body because of disease and illness sometimes it was nice to leave and visit a different world. A world where the rules were fair and everyone had a chance if they tried hard enough. A world where you were important and powerful and evil didn’t win.

            Joe grew up playing games. They gave him hope and set in his mind a subconscious will to fight. He began to see his illness like the evil wizard of one of his games. A thing that made people sad that he could fight against. Something that could be beaten and lead him to a happily ever after.

            Years passed and there was always some fool who had a problem with video games, but luckily the games stayed and Joe had another world to escape to and a fight he always felt like he could win.